Discussion:
Christmas greetings
(too old to reply)
Sofia
2009-12-29 19:41:17 UTC
Permalink
Hi guys and gals,

Just wanted to say how I hoped you all had a great Christmas and
will also have a great New Year, and I hope you never had many
injuries due to epilepsy.

I have to say that personally I got through it perfectly, with the
exception of just one minor seizure at the Christmas table that almost
frightened my very young niece into having one herself. She was a
little shocked for a short while, but other than that everything went
well.

Does any of the rest of the group have any Christmas tales to share?

Happy New Year

Sofie
--
Please visit my deviantART page: http://sofen.deviantart.com/
G.
2009-12-30 03:01:31 UTC
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Post by Sofia
Hi guys and gals,
Just wanted to say how I hoped you all had a great Christmas and
will also have a great New Year, and I hope you never had many
injuries due to epilepsy.
I have to say that personally I got through it  perfectly, with the
exception of  just one minor seizure at the Christmas table that almost
frightened my very young niece into having one herself. She was a
little shocked for a short while, but other than that everything went
well.
Does any of the rest of the group have any Christmas tales to share?
Happy New Year
Sofie  
--
Please visit my deviantART page:http://sofen.deviantart.com/
Hi. Only one *strange event I hadn't counted on. My *primary
Doctor died suddenly in October from a Well Advanced cancer he had
(liver? not sure). Two things I hadn't counted on-- aside from my
and other's loss of a Primary Care Physician, who probably had a
Patient list numbering about 2000.

1) He had *all my Neuro, Hospital and History information in his
files, back to 1978. Only a busy signal from his 'new' (recent)
receptionist is all I get the 8+ times I've tried to call over last 4?
weeks.

2) I had to find a New Doctor on about 2 week's notice to Re-
Prescribe the 2 anti-ep pills I take. Since *that one didn't put any
Repeats on the script, I'll have to go see him each 90 days, to get
new prescription to have the (nearby) pharmacy fill. (I assume he
did that in case I change Doctors again, *or that might be only way he
can Bill Ontario for the cost of Refilling/ writing the script. )

3) After more than 16 years, I *still have one Insurance Company
who will randomly kick out a "Continuance of Disability" form they
want my Doctor to complete (at *my expense if there are any charges --
Post by Sofia
there weren't since Canada has had Medicare since 1964). I expect
them to continue to do that until I'm gone for good... They are the
Stupidest Corporation I've encountered in my 60+ years, so I expect
little of them, and they comply.

4) Last--- this is the Only Doctor I have listed on my Medic Alert
Bracelet and *their files. *If I had a seizure, an Emerg. Doctor
wouldn't be able to reach a Doctor, only my Family contacts (2). I
don't know if it's worth keeping the Medic Alert files and bracelet up
to date. I'll phone them after Jan. 1 and ask them if they've
encountered something like this before. I assume they must have with
1000s of people who wear these things. G./
Sofia
2010-01-20 01:14:41 UTC
Permalink
On Tue, 29 Dec 2009 19:01:31 -0800 (PST)
Post by G.
Hi. Only one *strange event I hadn't counted on. My *primary
Doctor died suddenly in October from a Well Advanced cancer he had
(liver? not sure). Two things I hadn't counted on-- aside from my
and other's loss of a Primary Care Physician, who probably had a
Patient list numbering about 2000.
1) He had *all my Neuro, Hospital and History information in his
files, back to 1978. Only a busy signal from his 'new' (recent)
receptionist is all I get the 8+ times I've tried to call over last 4?
weeks.
Ugh, this sounds terrible! Couldn't they have just transfered all this
Physician's patients to other expert doctors at the hospital? :-(

Can I ask, did you run out of meds before you actually found a new
neuro, and what on earth has now happened to your Hospital and History
files, will they ever be found, or have they now disappeared for ever?

Good Luck for the future

Sofie
--
Please visit my deviantART page: http://sofen.deviantart.com/
G.
2010-02-01 04:02:10 UTC
Permalink
Post by Sofia
On Tue, 29 Dec 2009 19:01:31 -0800 (PST)
   Hi.   Only one *strange event I hadn't counted on.    My *primary
Doctor died suddenly in October from a Well Advanced cancer he had
(liver? not sure).    Two things I hadn't counted on-- aside from my
and other's loss of a Primary Care Physician, who probably had a
Patient list numbering about 2000.
  1)   He had *all my Neuro, Hospital and History information in his
files, back to 1978.  Only a busy signal from his 'new'  (recent)
receptionist is all I get the 8+ times I've tried to call over last 4?
weeks.
Ugh, this sounds terrible! Couldn't they have just transfered all this
Physician's patients to other expert doctors at the hospital? :-(
Can I ask, did you run out of meds before you actually found a new
neuro, and what on earth has now happened to your Hospital and History
files, will they ever be found, or have they now disappeared for ever?
Good Luck for the future
Sofie
--
Please visit my deviantART page:http://sofen.deviantart.com/
I thought it was too (awful). But when I went to see the new
(closer) Doctor last week for the second of 100 day's supply of AEDs
to fill the prescription next door to his office, he told me that
older tests were likely out of date by now as I mention in another
post a few minutes ago (on this group). *That Doctor I actually got
by asking my Pharmacist if they knew a Doctor Closer to them who did
Neuro stuff and could take over my file if I didn't hear from the
former Doctor's office. It *was strange that with about 2000? patients
or whatever that Doctor had, they didn't have a method of contacting
his Patient List by Mail or Phone to tell them he was no longer
there. **I found out from a neighbour. The Doctor's phone just rang
permanently 'busy'.... Not a smart way to run (close) a business.
Lucky I didn't buy a Car from him !! :-<

Also, rather than write me new 'scripts' this time, since I took
in the Pill bottle and Case of 2 pills I needed, he picked up the
phone, called the pharmacy *direct (there's a special code they enter
here for Doctor's offices calling a Pharmacy by phone), and he Renewed
the prescription right there. I got the pills the next day.
(I keep a 7-day pill case, so I know more than a week ahead when
I'll need repeats of any pills, and have used that since 1993.)

Another 'side effect' from losing that Doctor and his Records (if
he *had them), is he's *also listed as a Primary Doctor (still) on my
Medic Alert Bracelet. I have to call Medic Alert --see what *they
suggest I do now that I don't have *any Doctor as my Primary Care
person to call if I show up in the Hospital unaware of why I'm
there.. :-<
That was the main reason they originally wanted me to get a Medic
Alert Bracelet to start with, when my szrs. were *not controlled, and
I was in Emerg. 4-6 times before we got the correct pills to control
my CP Seizures.

(I have 2 **Family contacts listed at Medic Alert data centre, so
might keep that active, in case I ever have another seizure or medical
need, so long as I keep Their numbers up to date.)
My 'passed' Doctor would also fill in Insurance Forms I still get
*each 18-24 months from a Life Insurance Company who send medical
forms these last 30 years, to continue (Life) Insurance coverage.
*They are not the Smartest ants on the hill... You'd think after 20
years, they'd agree the medical damage just *might be permanent. But I
over-estimate their skill levels... G./
Sofia
2010-02-24 18:56:42 UTC
Permalink
Post by G.
*That Doctor I actually got
by asking my Pharmacist if they knew a Doctor Closer to them who did
Neuro stuff and could take over my file if I didn't hear from the
former Doctor's office. It *was strange that with about 2000? patients
or whatever that Doctor had, they didn't have a method of contacting
his Patient List by Mail or Phone to tell them he was no longer
there. **I found out from a neighbour. The Doctor's phone just rang
permanently 'busy'.... Not a smart way to run (close) a business.
Lucky I didn't buy a Car from him !! :-<
This sounds like they've sacked the receptionist and shut down the
entire hospital too! You seem to have become non-existent to your
country's health care department - I thought this was "supposed" to be
one of the first areas tackled by your new president? :-(

It sounds odd to have your meds prescribed by your hospital neuro
every single time you collect them too. Here in the UK patients only
see their neuro every six months, and he/she's the specialist who
initially prescribes your meds after discussing what might/might not be
better for you. He/she then writes a letter to your GP giving him/her
instructions of what pills you've been prescribed, and you just go
and collect your prescription each month from the local GP surgery...
with the signature of any of the other several GP's working there.

As for your bracelet, I've never worn one in my entire life, is it
supposed to be programmed or anything, and has this info ever been
changed when you first moved home, or simply just to a new neuro?
Isn't there any way of erasing any info that has been renewed?

Also, if you have a continuous illness of any kind, then you simply
become automatically exempt for your meds here in the UK.
I mean if people can't get hold of, or afford any of their meds, then
nobody is going to be able to buy them to take them in the first place,
and they'll have more seizures and accidents than they were originally
getting. This in turn will cause ambulance and hospital bills to rise
much higher too, and the hospital debts will have grown immensely!

One does hope you have found better success than the last time I spoke
to you!

Best of Luck

Sofie
--
Please visit my deviantART page: http://sofen.deviantart.com/
G.
2010-03-03 00:17:33 UTC
Permalink
Post by Sofia
Post by G.
*That Doctor I actually got
by asking my Pharmacist if they knew a Doctor Closer to them who did
Neuro stuff and could take over my file if I didn't hear from the
former Doctor's office. It *was strange that with about 2000? patients
or whatever that Doctor had, they didn't have a method of contacting
his Patient List by Mail or Phone to tell them he was no longer
there.  **I found out from a neighbour.  The Doctor's phone just rang
permanently 'busy'....    Not a smart way to run (close) a business.
Lucky I didn't buy a Car from him !!  :-<
This sounds like they've sacked the receptionist and shut down the
entire hospital too!
***** His original Receptionist had retired last year. I expect the
new Receptionist didn't know what to do, but should have either
contacted the (retired) Receptionist if she had her Number, *or the
Ontatio Medical Health department for guidance.
The Doctor worked out of his own office, not a Hospital, and
(below) I have a Public Health Card that identifies me, the only
thing I've lost is whatever history the first (deceased) Doctor had
in his files. Other hospital etc. records are held elsewhere. //

You seem to have become non-existent to your
Post by Sofia
country's health care department - I thought this was "supposed" to be
one of the first areas tackled by your new president? :-(
It sounds odd to have your meds prescribed by your hospital neuro
every single time you collect them too.  Here in the UK patients only
see their neuro  every six months, and he/she's the specialist who
initially prescribes your meds after discussing what might/might not be
better for you. He/she then writes a letter to your GP giving him/her
instructions of what pills you've been prescribed, and you just go
and collect your prescription each month from the local GP surgery...
with the signature of any of the other several  GP's working there.
Canada they write it for e.g. 4 refills of 200 tablets (100
days), and the Pharmacy calls the Doctor if repeats are necessary
**after the original prescription runs out. I *don't have to go back
to the Doctor (usually) for him to Charge for the time to call the
Pharmacy and renew a prescription OR for the Pharmacist to call him to
confirm renewal. Above no. of pills lasts me 3+ months each time.
In fact the *last time I went to that Doctor, he dialed the Pharmacy
direct while I was there, gave his 'Doctor number', and the
Prescription registry numbers and the Pharmacy had the 'refill' order
right then for pickup next day./
Post by Sofia
As for your bracelet, I've never worn one in my entire life, is it
supposed to be programmed or anything, and has this info ever been
changed when you first moved home, or simply just to a new neuro?
Isn't there any way of erasing any info that has been renewed?
****** The point of the Medic Alert Bracelet, here, is anywhere in the
world can call them Collect, and get Medical Conditions e.g I have,
Blood type, Pills I take (not doses as those change), so a hospital
doesn't give me treatments that might conflict with e.g. Tegretol.
It also has up to *3 Doctors (now I'm at *0, the point of my earlier
post), and up to *3 Family contacts (who are still valid) at Home or
Work phone numbers, to tell them where I am...
Post by Sofia
Also, if you have a continuous illness of any kind, then you simply
become automatically exempt for your meds here in the UK.
I mean if people can't get hold of, or afford any of their meds, then
nobody is going to be able to buy them to take them in the first place,
and they'll have more seizures and accidents than they were originally
getting. This in turn will cause ambulance and hospital bills to rise
much higher too, and the hospital debts will have grown immensely!
The Base cost of 200 tablets in Canada is $56 and $50. I pay 20%
of those amounts, the Insurer pays the other 80%. In the U.S. they
pay *100%, the point of my earlier (longgg) post. Many people don't
have Health or prescription insurance, like you do in the UK.
And as I'm in Canada, I shouldn't speak for what they have or not,
as I don't live there. G./
Post by Sofia
One does hope you have found better success than the last time I spoke
to you!
Best of Luck
Sofie
Hi see my earlier note today (on your thread or mine), about my
living in *Canada. The Pharmacy near me gave me a More Local Doctor
who did Seizure and related prescriptions.
On another thread I might have also put a note that *he only keeps
EEGs and Records going back 12 to 18 months, as most *other
Neurological condtions change over time, and Olde old records (like
mine back to 1993 and before), would be useless to a newer Doctor
treating any Changes in my szr. condition.
I *haven't had a seizure using *same medications since mid-1998.
That's 12 years now. The Neuro who first treated those was in 1993.
And my Pre- existing conditions started in 1979, the seizures not
until 1993. G./

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